Cassidy has been fighting many things in her life since she
was born. I always knew that something was wrong but I never
could get the Doctors to agree. Last year on August 15, 2007
she had a MRI done. Before I could get her a fourth of the
way home her pediatrician was calling me to tell me they had
found some crowding of her brain and spinal cord on her MRI.
Chiari Malformation is the name of what she has.
I had no idea of the road we were about to take.
Later we would find out that she has Syringomyphelia as
well. Like so many other children she will have to live with
this for the rest of her life there is NO cure for what she
Cassidy will never be able to play her soccer again that
she loves so much and was so wonderful at, until she started
to lose her coordination. Falling at times while she was
walking and numbness and tingling in her hands and arms.
Prayer is what we all need to do! Not only for her but for
all the children is what she says.
She just underwent her first surgery for Posterior Fossa
Decompression. We are at home right now but have had to go
back a few times for some complications. She isn't able to
return to school at the moment so we are homebound. The
doctors say this is just the first of surgeries she will
have to have. We have hopes that the decompression surgery
will help the 2 syrinx she has in her spine, if not they
will have to place a shunt in each one and redirect the
fluid into her abdominal cavity. We along with our church
pray very hard that God will help her overcome all of this
in her life.
Cassidy also battles with a Developmental Delay as well
as Speech problems and ADHD. But she is one of the strongest
people I know. My princess in life, my best friend when I
get sad about it all, she is a wonderful child to her
Cassidy has a mission in life and that is to get well to
help other children like herself to find a cure for this
awful disease. www.asap.org
The ASAP organization has helped me alot, sending emails and
monthly newsletters about CM and SM. So Lets All Pray To One
Day Find A Cure For This!!! You can also visit
to find out more information.
PLEASE keep Cassidy in your prayers that one day
they will find a cure for this!!!
Cassidy is still struggling with many complications and pain
and so many other aspects in her life because of this she
rarely smiles any more and she is such a wonderful child.
Comments: Hannah Montana, coloring, Sunday School, making
bracelets to sell to earn money for a cure one day, playing
with her baby dolls and Barbie dolls, listening to music.
watching Disney channel