Our good friend Colleen passed away on
March 9, 2004. She will be greatly missed as she participated in ALL
aspects of cacfriends.com & ShareaCard.org, along with being a sweet
friend to so many of us.
CAC Friend Margie P. created this in
In 1983 at the age of 20 I was diagnosed with Neurofibramotosis
II aka NF2. NF2 affects the brain and spinal chord which is what
differentiates it from NF 1. My entire life changed. At this time I
had 1 of 2 acoustic neuromas removed which left me deaf. The second
tumor was removed in 1986/1987 in a 2 part process. Numerous
'little' surgeries were done on fibromas through out my body (hands
feet fingers etc) since these fibromas grow on nerves themselves
under the skin and can be excruciatingly painful. It was necessary
and the only means of relief. There is no cure for NF. Basically my
life had become having surgery, recuperating or
occupational/physical therapy. In 1991 a dumbell shaped tumor on my
brain stem/spinal chord was found, and again surgery. All of this
(symtoms or surgeries) has left me with many more problems,
disabilities and a whole new way of dealing with life....humorously.
My mom has been my biggest supporter. She's moved to hospitals
with me and I've just really know that she's there for me when I
need her as is the Lord. There have been many situations in my life
where circumstances and their details were resolved PERFECTLY which
could haveby no means been done by anyone but God This was all too
clear. HE has been my strength through all of this and still is. I
have had several quiet years (no surgeries) but dealt with other
a Pain management clinic, opthamology orthopedics, pulmonary clinics
and so on Through all of this I have strived for a positive
independent way of life. People comment about how amazing I am which
rather annoys me. To me what choice do I have? Give up crawl into a
corner? Be miserable? Cry why me? That is not me at all. I will
confess I did do this last Fall when I was told that there was
nothing more that they could do. I was also severely sick with
pneumonia I did get through my 'dark' period and threw myself back
into 'life'. I'm trying very hard to maintain my positive outlook
despite the emergency surgery I just came home from (November 2001)
and a very uncertain future.
Since I have found 'life' on the computer I have a whole new world
which is easy to be free of any impairments.
CAC Friends has become my world. It is a great place to 'live'
and I am a part of ShareaCard and am very very happy to be as I can
empathize with many of these monthly features. Colleen B.
(Pictured above with her Mom - Colleen is on the right)
November 2001 Feature
Birthday: April 15
Thank you for
cards mailed to
Colleen and her family.
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