I'm 48 years old. Two years ago I was
working 60+hours a week at my hotel management job, volunteering
with physically and mentally disabled and enjoying life.
Things changed literally overnight.
With pain everywhere, headaches ,
difficulty walking and double vision. Over a few months and
many appointments my doctor decided I was"a lazy woman " who
didn't "want to work ".
By this point I could no longer lift a
glass or even a fork to feed myself.
I tried a few new doctors and was finally
diagnosed with PMR and GCA. Treatment; steroids.
I am working hard at putting the PMR and
GCA in remission but the side effects of steroids long term are
almost as bad. A life threatening infection, steroid induced
diabetes, osteoporosis just to mention a few.
I've always been the giver, the helper, the
one sending positive thoughts.
Friends and family are not understanding my
being ill and for the first time in my life I'm needing
uplifting to keep going.
When pain allows I crochet. I spend a lot
of time at doctors appointments and am about to have a surgery
that will require a rehab stay also so I do a lot of simple
crosswords, and I just got my first adult coloring books.
I read historical romances or anything I
can get my hands on. Blue is my favorite color and I love any
scent for the season. I have celiacs so I can't eat gluten.