as told by her mother, Amy
Marianne into her primary care physician's office on Fri,
02/10/06. She had been having a little leg pain and limping.
She's in athletics, and we thought it might be a strain or
some growing pains. Her primary care immediately called an
orthopedist, and he saw us two hours later.
were done, and he scheduled us for an MRI Mon morning at 7:30.
Later that afternoon he called with the news - it was
osteosarcoma. Tuesday we met with the hematology/oncology
specialist and Marianne had a CT scan and a bone scan. Lung
nodules were found on CT. Wednesday we saw a pediatric surgeon
and surgery was scheduled for Thursday. The Dr. took a biopsy
from the leg tumor and a lung nodule. Marianne had heart
tests, x-rays, and a hearing test. We went home from the
hospital Friday night. Saturday the Dr. called and confirmed
the bad news. He said to go in Monday morning at 7:30 for
kidney tests and to meet him in his office after that. He said
he plans on admitting her to start chemotherapy on Monday if
there is a room available, and that she would be there 3-4
My mother and
James' parents have been by our side every step of the way.
Big sister Rachel has fixed suppers for us, and little brother
David has been a great help. The doctors and staff at Cook
Children's Medical Center have been wonderful.
Sunday we noticed clumps of hair falling out. We made a phone
call and found someone willing to do a haircut on Monday, the
day the salon is usually closed, so she wouldn't have to be
around a lot of people. It turned out really cute! The
hairstylist donated her service in honor of her mother, who is
a cancer survivor. Now we're on the lookout for cute, trendy
On May 16th, Marianne had a knee replacement.
have to have her leg extended in a splint for 6-8 weeks to
help protected the long incision (up the thigh and down the
lower leg) and prevent bending the knee. The doctor said the
pain will gradually fade away over several months and that the
rehab time will be close to a year.
Marianne's Mom keeps a journal up to date on her
I've added some pics from Marianne's website to our