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November 2013

 

  October     Sasha / Will B.   December


Sasha's Story

 

 

 

Sasha was born 4 weeks early fighting for her life...and the fight has never stopped.

She has had many serious infections and medical crisis's and has struggled with finding a level of stability and wellness off and on her whole life.

She receives weekly infusions of blood product pooled from thousands of donors in order to stave off life threatening infections due to her immune deficiency.

Sasha also has seizures, episodic ataxia type 2 with familial hemiplegic migraine, and her body often does not regulate itself properly, just like her brother, Will.

This year, Sasha has had to adjust to a lot of new medications, being put on oxygen, and lots of medical interventions that have really been tough on her.

Despite it all, she is fierce yet full of flowers and sunshine.  She has a smile that can light up your world and her courage and strength rivals no other.

Both children have just returned to school after having been out since the start of Christmas Break in 2012 due to their medically fragile states.  It has been a huge adjustment returning to school but one that we embrace with excitement and hope that they can continue to share time at school with their peers for the entire school year ahead.

Comments: Sasha likes stuffed animals, Pokemon, bugs, arts and crafts, playing dress up, music, reading, playing her iPad.
 



 

 



 

 

 

 

 

 

 

 

 

 

 

 

 

 

November 2013  Feature


 

    

Name: Sasha

Birthday: August 20, 2005

Diagnosis:  Mitochondrial Disease, Primary Immunodeficiency Disease

Interests/Likes: Stuffed Animals/Pokemon/ Bugs/ Arts & Crafts

Mailing Address:

 

Sasha

C/O ShareaCard

992 Hershey Road

Elizabethtown, Pa. 17022

 



 

 

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