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August 2004


       June          Will        September



Will's Story


as told by his mom, Christian




Will was born with cystic fibrosis. His first five years of life have not been easy ones. He has many complications including intolerance to lactose, protein, frequent staph infections, hypertonia (low muscle tone), sensory problems, an immature gag reflex, speech delay, and oral sensory issues and speech disorders due to delayed development. He has been in the hospital twice for things unrelated to Cystic fibrosis. He eats and drinks what he wants but needs to take medication to counter the effects of multiple fats and proteins in most foods. He also has to have chest therapy to keep his lungs clear and is on nebulizer treatments as needed. He is doing better, but it has not been an easy road.


He will remain in preschool for one more year because we want him to mature a little bit and to learn to socialize better, but he is definately smart enough to advance onto kindergarten.


Will has two older brothers and one younger one - all experiencing an array of developmental delays, but none as serious as Wills.


Will loves the color blue. He also likes puppies, kittens (has two of his own, Tiger and Tigger!) and teddy bears. His favorite TV shows/ Characters are: sesame street, blues clues, cyberchase, maisy, franklin, bob the builder, Dragon tales, Disney cartoons and movies (stanley, mickey & friends, Nemo, Stitch, 101 Dalmations, etc) , George Shrinks, Jimmy Neutron, Scooby Doo, Tom and Jerry, The Wiggles, Clifford, and Berenstain Bears.











August 2004 Feature



Name: Will

Birthday:  April 22

Diagnosis: Cystic Fibrosis

Interests/Likes:  The color Blue/kittens/Disney cartoons/Jimmy Neutron

Updates on: Will


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